Board of Directors & Executive Team
Business Advisory Board
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Tom Horton
Tom Horton is the former Chairman and Chief Executive Officer of American Airlines. Tom is also the Lead Director on the Boards of Walmart, General Electric, and Qualcomm.
Tom joins the FOXG1 Research Foundation to help solve the most meaningful challenge of his life: finding treatment for his first granddaughter, Gianna, who was diagnosed with FOXG1 syndrome in early 2021.
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Neil Kumar, Ph.D.
Dr. Kumar is the CEO and co-founder of BridgeBio Pharma, a company focused on developing and delivering medicines for rare, genetic diseases.
Prior, Neil has served as CEO of Eidos Therapeutics, Inc., interim Vice President at MyoKardia, Inc. and Principal at Third Rock Ventures.
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Yael Weiss, M.D, Ph.D.
Dr. Weiss is Vice President of Business Development at Ultragenyx, a company specializing in the development of therapies for the treatment of rare genetic diseases.
Prior, Yael was Executive Director at Merck, Director of Medical Affairs and Business Development at Genzyme Israel, and Vice President at Columbine Ventures.
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Bruce Leuchter, M.D.
Dr. Leuchter is President & CEO, Neurvati Neurosciences that focuses on rare pediatric neurodevelopment conditions. He brings wide-ranging experience in academia, clinical medicine, and industry. Dr. Leuchter is on the Scientific Advisory Committee for the Daedelus Fund for Innovation at Weill Cornell Medical College, and as a member of the Life Science Institute Leadership Council and Drug Discovery Advisory Board at The University of Michigan.
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Oliver Roll
Oliver Roll is the foundation’s Chief Investment Officer and FOXG1 dad to Amara.
Oliver serves as the Chief Communications Officer for SAP. Prior, he served as the Chief Communications Officer for VMware and Cisco and has led the communications function for Microsoft’s Office Division and Microsoft’s global operations.
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Premal Shah, Ph.D.
Dr. Shah is the CEO of MyOme, a personalized medicine company that helps families understand their DNA and how it can impact their health and well-being, based on the latest science. Prior, Premal was President, COO and co-founder at Ciitizen, a leading digital health company. Before Ciitizen, Premal was CEO at Applied Proteomics.
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John Lambeth
John Lambeth is the Founder and President of Civitas law firm that specializes in developing unique funding strategies for tourism and travel promotion. He is the expert in tourism district creation. John provides pro-bono legal services to the Foundation. John is also a FOXG1 great uncle to our CFO’s son, Crosby.
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Peter Shapiro
Peter Shapiro is an independent music entrepreneur who owns and operates renowned venues, including Brooking Bowl, the Capital Theater; created legendary events, such as Fare Thee Well, Lockn’ music festival, and more. He is the publisher of Relix magazine and sits on the board of several nonprofits, including: The Rock and Roll Hall of Fame Museum, NY Public Radio, City Park Foundation, and is Chairman of Headcount.
FOXG1 Research Foundation Global Chapters & Affiliates
We have created the template for FOXG1 Research Foundations to launch across the globe, under one umbrella, all working together strategically towards the same goal. We are stronger together. If you would like to start the FOXG1 Research Foundation in your country, please reach out to us! contact@foxg1research.org